GOALS: An ALS United Podcast

GOALS Podcast #10 with Josh Hunter on ALS, AEW, Research, and Mental Health

Josh Hunter has a form of ALS called Juvenile ALS. Over the past year, Josh has been active in ALS awareness, advocacy, and research. In this ALS United Mid-Atlantic GOALS Podcast, Josh talks about a special week in review and shares his experience with his daughter Phoenix at the AEW Dynasty show and the Help and Hope Symposium. Other topics include mental health, caregiving, and an upcoming event on June 14th with Ric Flair at Harrah's Philadelphia Casino in Chester, PA. Join our ALS mission a www.alsmidatlantic.org
 
#ALS #alsunited #alsadvocacy #ALSresearch #AEW #pennsylvania

GOALS Podcast #9 with Diane Reibel, PhD, on ALS and Mindfulness

Diane Reibel, PhD, joins the ALS United Mid-Atlantic GOALS Podcast to discuss her work on ALS and Mindfulness. Topics include the sciences behind mindfulness, reducing stress, and programs to benefit people with ALS and their caregivers. To learn more about ALS and our programs, visit www.alsmidatlantic.org
Diane Reibel, PhD, is the director of the Myrna Brind Center for Mindfulness. Learn more about her work at https://www.jeffersonhealth.org/conditions-and-treatments/mindfulness-based-stress-reduction/mindfulness
#ALS #ALSUnited #Mindfulness #stress #caregiving #Podcast

GOALS Podcast #8 with Dana Little - ALS Caregiving and Advocacy

Dana Little joins the ALS United Mid-Atlantic GOALS Podcast to discuss her experience as a caregiver for her husband during his battle with ALS, how friends and family provide comfort and support, the importance of advocacy, and working to increase funding for research. Learn more about ALS and our services by joining our ALS mission at www.alsmidatlantic.org
 
#ALS #caregiving #podcast #alsunited #advocacy #alsadvocacy

ALS United Mid-Atlantic GOALS Podcast 6 with Carol Hamilton from ALS TDI

Carol Hamilton joins the ALS United Mid-Atlantic GOALS Podcast to discuss the ALS research efforts from The ALS Therapy Development Institute (ALS TDI). In this episode, Carol talks about increased scientific collaboration, the challenges of complex trials, and empowering people with ALS through participating in ALS research.
Learn more about ALS and the work of ALS United Mid-Atlantic at www.alsmidatlantic.org
Learn more from ALS TDI at www.als.net
 
#ALS #Research #Science

GOALS Podcast #6 - Value of Social Work for the ALS Community with Anne and Melissa

ALS United Mid-Atlantic social workers Melissa Coll and Anne Cooney join the GOALS Podcast to discuss their work assisting ALS patients and families, the value of a multidisciplinary treatment center, navigating insurance, and advocating for the ALS cause.
Join Melissa and Anne at the 2025 Help and Hope Symposium by registering at https://www.helpandhopealsmidatlantic.org/
Learn more about ALS, our services and research, and how to support the ALS mission at www.alsmidatlantic.org
#ALS #alsunited #socialwork #socialworker #socialworkers #advocacy

BONUS Episode with Jackie Cox on ALS, honoring her mother, and a special event at Haverford College

Jackie Cox discusses her mother's battle with ALS and the event at Haverford College to raise money for the ALS cause that takes place on April 4th, 2025. To learn more about ALS, upcoming events, and how to support ALS United Mid-Atlantic, visit www.alsmidatlantic.org
 
#ALS #ALSUnited #Haverford #podcast #Pennsylvania
 
https://secure.alsmidatlantic.org/site/TR/DIY/General?team_id=7001&pg=team&fr_id=1271

GOALS Podcast #5 with Alisa Brownlee on ALS and Accessibility

Alisa Brownlee, ATP, CLIPP, CAPS, WSP, CEAC/Mastery, joins the ALS United Mid-Atlantic GOALS Podcast to discuss accessibility options for people with ALS, home modifications, and the personal connection between care staff and those living with ALS.
On Thursday, April 10th, Alisa will be one of the presenters at the ALS United Mid-Atlantic Help and Hope Symposium in King of Prussia, PA.
Register now at: https://www.helpandhopealsmidatlantic.org/ Join our ALS mission at www.alsmidatlantic.org
 
#ALS #alsunited #assistivetechnology #accessibility #podcast

Episode 4 - Discussing I AM ALS and the Tim Lowery Series

Tim Abeska, Cristy Hardin, and Deb Winters join the ALS United Mid-Atlantic GOALS Podcast to discuss the Tim Lowery Series and building community for those living with ALS. We talk about empathy dinners, building connections, and hope through advocacy. Learn more about Tim Lowery at: https://www.iamals.org/stories/tim-lowrey/
Join the ALS United Mid-Atlantic mission at www.alsmidatlantic.org
#ALS #ALSUnited #IAMALS #ALSAdvocacy #Advocacy #Empathy