GOALS: An ALS United Podcast

Discussing issues important to the ALS community with views from people living with ALS and those supporting the ALS cause. Topics range from research to caregiving to advocacy and fundraising. Support the mission of ALS United Mid-Atlantic at www.alsmidatlantic.org
Discussing issues important to the ALS community with views from people living with ALS and those supporting the ALS cause. Topics range from research to caregiving to advocacy and fundraising. Support the mission of ALS United Mid-Atlantic at www.alsmidatlantic.org
Episodes
Episodes



Sep 8, 2026
Sep 8, 2026
29 min
Jess and Jeff from Samuel Adams Brewery join the ALS United Mid-Atlantic GOALS Podcast to talk about their efforts to raise money and awareness for the ALS cause. Join them to support the Lehigh Valley ALS United Walk at www.lehighvalleyalsunitedwalk.org or find an ALS United Walk near you at www.alsunitedwalk.org
Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware. T
o learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org
Sep 8, 2026
29 min


Aug 31, 2026
Aug 31, 2026
31 min
Kim Eppeheimer is one of the most recent additions to the ALS United Mid-Atlantic Board. In this episode of our GOALS Podcast, Kim shares her family's ALS story, the experience she learned as her mother and siblings came together as caregivers, and her hopes for the future of ALS United Mid-Atlantic. Kim is a non-profit leader in Delaware and she is excited to support the Delaware ALS United Walk. Learn more at www.alsunitedwalk.org
Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.
To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org
Aug 31, 2026
31 min


Aug 25, 2026
Aug 25, 2026
35 min
Kate Adamek, LCSW, joins the ALS United Mid-Atlantic GOALS Podcast to talk about her work as a social worker serving the ALS community in Delaware. In this episode, Kate discusses support for caregivers, addressing family dynamics, and the importance of taking a break for your own mental health.
Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.
To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org
Aug 25, 2026
35 min



Jul 21, 2026
Jul 21, 2026
48 min
Shelly Lewis PT, DPT, EdD, has assisted thousands of people with ALS with compassionate and expert physical therapy work since 1999. She has been connected with the care team at ALS United Mid-Atlantic for over 25 years and is currently the Co-Director of Clinical Education, Department of Physical Therapy and Associate Professor at Jefferson College of Rehabilitation Sciences. In this GOALS Podcast, Shelly talks about her experience providing care for the ALS community, what to know about strength and exercise, tips for caregivers, and why PT is an essential part of a multidisciplinary team.
Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS.
ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware. To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org
Jul 21, 2026
48 min


Jul 14, 2026
Jul 14, 2026
37 min
Maria Malfi lost her mother to ALS. Through her experience and her personal research, Maria has focused her attention on issues of stress and mental health and how they impact an ALS diagnosis and affect caregivers as well. In this GOALS Podcast, Maria talks about her family's experience with ALS, touring the research lab at Penn State Health Hershey Medical Center, and how to have better conversations about mental health.
Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.
To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org
Jul 14, 2026
37 min


Jul 7, 2026
Jul 7, 2026
39 min
Taryn Norley, President and CEO of ALS Arizona, joins the ALS United Mid-Atlantic GOALS Podcast to discuss the work of serving the ALS community in Arizona and how it compares to other ALS United partners. Topics include delivering on care services, partners with clinics and researchers, serving rural communities, and inspiring events. To learn more about ALS Arizona, visit www.alsaz.org
Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.
To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org
Jul 7, 2026
39 min


Jun 30, 2026
Jun 30, 2026
28 min
Brianna Lisi, MS, is a PhD candidate doing her work at the Jefferson Weinberg ALS Center in Philadelphia. In this Podcast, Brianna talks about what inspired her to go into ALS research, what a typical day is like for a researcher, motor neurons, astrocytes, and what tests can prove useful for ALS science.
Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.
To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org
Jun 30, 2026
28 min


Jun 22, 2026
Jun 22, 2026
28 min
Josi Shimkus, MA, CCC-SLP, Hackensack Meridian Health Jersey Shore University Medical Center, joins the ALS United Mid-Atlantic GOALS Podcast to discuss her expertise and work assisting people with ALS with communication therapy and technology. Topics include swallowing issues, tracking speaking strength, coordinating with the clinic team, and the ALS United Walk.
Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.
To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org
Jun 22, 2026
28 min





