GOALS: An ALS United Podcast

Discussing issues important to the ALS community with views from people living with ALS and those supporting the ALS cause. Topics range from research to caregiving to advocacy and fundraising. Support the mission of ALS United Mid-Atlantic at www.alsmidatlantic.org
Discussing issues important to the ALS community with views from people living with ALS and those supporting the ALS cause. Topics range from research to caregiving to advocacy and fundraising. Support the mission of ALS United Mid-Atlantic at www.alsmidatlantic.org
Episodes
Episodes



Oct 26, 2026
Telling the ALS United story with Philly Philms
Oct 26, 2026
Oct 26, 2026
35 min
Rob and Mikaelyn from Philly Philms join the ALS United Mid-Atlantic GOALS Podcast to talk about their history of showing the ALS story. Philly Philms produces videos for the Flame of Hope and other videos which are shown at our Annual Celebration event.
Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.
To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org
Oct 26, 2026
35 min


Oct 12, 2026
Brain Health, CTE, and ALS with Chris Nowinski
Oct 12, 2026
Oct 12, 2026
36 min
Chris Nowinski is the Co-Founder and CEO of the Concussion and CTE Foundation. In this ALS United Mid-Atlantic GOALS Podcast, Chris talks about what he's learned about concussions and long-term brain health, as well as how brain donation and science can help us understand and treat ALS.
To learn more about @concussionandcte , visit https://concussionandcte.org/
Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.
To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org
Oct 12, 2026
36 min


Oct 6, 2026
Oct 6, 2026
39 min
Colin Quinn, MD, helps lead the Penn Comprehensive ALS Center in Philadelphia, PA. In this video, Dr. Quinn discusses what led him to ALS research, his work in veterans care, advances in understanding of TDP-43, and the value of multidisciplinary care. Learn more about his work at: https://www.pennmedicine.org/specialties/neuromuscular-disorders-care/comprehensive-als-center
Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.
To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org
Oct 6, 2026
39 min


Sep 28, 2026
Sep 28, 2026
43 min
Jeremy Shefner, MD, PhD, had decades of experience leading ALS research. In this GOALS Podcast, he talks about measuring the success of potential therapies, what is needed for successful clinical trials, and early ALS symptoms and diagnosis. Learn more about his work at the Barrow Neurological Institute at https://www.barrowneuro.org/person/jeremy-shefner-md-phd/
Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.
To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org
Support an ALS United Mid-Atlantic Walk at www.alsunitedwalk.org
Sep 28, 2026
43 min


Sep 21, 2026
Sep 21, 2026
27 min
Candice Ray is the Founder and Chief Executive Officer at Helping Hands Warming Hearts LLC. She is one of the newest members of the ALS United Mid-Atlantic board. In this discussion, Candice shares her personal experience with ALS, the skills she brings to the board, and her drive to expand advocacy and programs to help families impacted by ALS.
Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.
To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org
Sep 21, 2026
27 min


Sep 14, 2026
Sep 14, 2026
34 min
Robert Bowser, PhD, is Chief Scientific Officer and the John P. and Betty Van Denburgh Chair for Neuromuscular Disease, and professor and Chair of the Department of Translational Neuroscience at Barrow Neurological Institute. He joins the ALS United Mid-Atlantic GOALS Podcast to discuss his 30 years of experience in ALS research, advances in understanding of biomarkers, the value of brain and tissue donation, and empowerment through science. To learn more about his work, visit: https://www.barrowneuro.org/person/robert-bowser-phd/
Thank you to @ALSArizona for making this connection and thank you to @BarrowNeuro for their continued work to understand ALS and get us closer to new treatments.
Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.
To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org
Sep 14, 2026
34 min



Sep 8, 2026
Sep 8, 2026
29 min
Jess and Jeff from Samuel Adams Brewery join the ALS United Mid-Atlantic GOALS Podcast to talk about their efforts to raise money and awareness for the ALS cause. Join them to support the Lehigh Valley ALS United Walk at www.lehighvalleyalsunitedwalk.org or find an ALS United Walk near you at www.alsunitedwalk.org
Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware. T
o learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org
Sep 8, 2026
29 min


Aug 31, 2026
Aug 31, 2026
31 min
Kim Eppeheimer is one of the most recent additions to the ALS United Mid-Atlantic Board. In this episode of our GOALS Podcast, Kim shares her family's ALS story, the experience she learned as her mother and siblings came together as caregivers, and her hopes for the future of ALS United Mid-Atlantic. Kim is a non-profit leader in Delaware and she is excited to support the Delaware ALS United Walk. Learn more at www.alsunitedwalk.org
Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.
To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org
Aug 31, 2026
31 min





