GOALS: An ALS United Podcast

Respiratory Care and ALS - ALS United Mid-Atlantic GOALS Podcast with Dr. Simmons and Dr. Twomey

Zachary Simmons, MD and Kathleen Twomey, MD join the ALS United Mid-Atlantic GOALS Podcast to share their work at Penn State Health Hershey Medical Center and their new innovations around respiratory care and ALS. Dr. Simmons has led the ALS Treatment Center at Penn State Health Hershey Medical Center for 30 years and Dr. Twomey is adding her expertise as a pulmonologist for ALS patients. O
ur mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.
To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Grief and ALS with Mark VandeBraak, PhD, FT, MT-BC ALS United Mid-Atlantic GOALS Podcast

Mark VandeBraak, PhD, FT, MT-BC joins the ALS United Mid-Atlantic GOALS Podcast to discuss issues about processing grief for those impacted by ALS. Dr. Mark talks about the various forms of grief, expressing compassion and empathy, opening up about our concerns, and what help is available for everyone.
Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.
To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Tim and Jeff Kurkjian join the ALS United Mid-Atlantic GOALS Podcast to talk ALS and Baseball

Tim Kurkjian and his son Jeff Kurkjian are hosts of the baseball podcast "Is This a Great Game or What?" They also share a strong support for the ALS cause after their family's loss of Tim's brother Matt to ALS.
Tim is the proud recipient of the 2022 BBWAA Career Excellence Award for his work as a baseball writer and journalist. In this episode of the ALS United Mid-Atlantic GOALS Podcast, Tim and Jeff talk about their family's history with ALS, their love of baseball, the support from the Philadelphia Phillies, and their experience at ALS United events.
Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.
To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Communication Issues Related to ALS. GOALS Podcast with Alisa Brownlee and Amanda Cuth for ALS United Mid-Atlantic

In this podcast episode, Alisa Brownlee and Amanda Cuth discuss the challenges and strategies related to speech therapy for individuals with ALS. They explore the impact of ALS on communication, the importance of voice preservation techniques such as voice banking and cloning, and the role of technology in enhancing communication. The conversation also covers compensatory strategies for speech therapy, emergency communication needs, and the emotional aspects of dealing with communication changes. Amanda emphasizes the need for professional guidance in navigating these challenges and highlights the advancements in communication devices and techniques.
Alisa Brownlee and Amanda Cuth each have many years of experience addressing communication needs for people with ALS.
Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.
To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

ALS United Mid-Atlantic GOALS Podcast: Giving Tuesday 2025 with Gale Ferranto and Buona Foods

Gale Ferranto and Buona Foods are uniting to match your donations for #GivingTuesday to ALS United Mid-Atlantic. In this GOALS Podcast, Gale discusses her mother's battle with ALS and her support for ALS care and research.
Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.
To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

How BCI and AI can combine to help people with ALS: GOALS Podcast with ALS United Mid-Atlantic and Synchron

Charles Poeppelman joins the ALS United Mid-Atlantic GOALS Podcast to discuss how Synchron is developing Brain Computer Interface technology to improve the lives of people with ALS. In this podcast, we discuss how AI can enhance the power of BCI, how BCI can improve safety, and how this technology can address accessibility and communication.
Learn more about the January 21st educational webinar at learnaboutbci.com Additional information at www.synchronbci.com
Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.
To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Stair Glides and ALS - ALS United Mid-Atlantic GOALS Podcast with Jamie Pace from Amramp

Alisa Brownlee hosts this special ALS United Mid-Atlantic GOALS Podcast with guest Jamie Pace from  ⁨@amRAMP⁩  about the benefits of stair glides for people with ALS. In this episode, Alisa and Jamie talk about the process of installing a stair glide and how it can be used to improve access in the home.
Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.
To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Veterans and ALS - ALS United Mid-Atlantic GOALS Podcast with Bill O'Sullivan

Bill O'Sullivan is a veteran living with ALS. He joins the ALS United Mid-Atlantic GOALS Podcast to talk about his family's history with ALS, his family's proud history of military service, his participation in ALS research, and his years of support for the ALS United Walk. Listen to his story and join our efforts today.
Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS.
ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware. To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org
https://youtu.be/e6ZGF4NMgf8