GOALS: An ALS United Podcast

GOALS Podcast 15 with Paul Melmeyer of MDA on ACT for ALS and Medicaid

Paul Melmeyer from  ⁨@MDA⁩  joins the ALS United Mid-Atlantic GOALS Podcast to discuss collaborating on ALS Advocacy, recent advocacy successes like the ALS Disability Insurance Access Act, reauthorization of ACT for ALS, and protecting Medicaid.
Learn more about MDA's work on Medicaid at: https://www.mda.org/press-releases/proposed-medicaid-and-health-coverage-cuts-raise-substantial-concern-for-the-neuromuscular-community
The mission of ALS United Mid-Atlantic is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS.
ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware. To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org 

GOALS Podcast 14 with Laura Ness of Hearts for Home Care

Laura Ness with Hearts for Home Care is the featured guest on the latest ALS United Mid-Atlantic GOALS Podcast. Topics include advocating for home care access, how people with ALS benefit from home care, and how home care is a smart choice for state budgets.
Learn more about Hearts for Home Care at www.heartsforhomecare.com
Learn more about ALS, our programs and services, and how to support the mission of ALS United Mid-Atlantic at www.alsmidatlantic.org

GOALS Podcast 13 with Daniela Zarnescu, PhD on ALS Research

Daniela Zarnescu, PhD, is the Associate Dean for Graduate Education and Postdoctoral Training at Penn State College of Medicine. She joins the ALS United Mid-Atlantic GOALS Podcast to discuss her work in ALS research, how people can enroll in ongoing studies, the advances in science during her career, and what gives her hope for the ALS cause.
Learn more about Dr. Zarnescu and her team at: https://sites.psu.edu/zarnesculab/meet-the-team/
Learn more about ALS, our programs and services, and how to take action to support ALS United Mid-Atlantic at www.alsmidatlantic.org

GOALS Podcast 12 with Maureen Reid, RN, BSN National Nurses Week and ALS Awareness

ALS United Mid-Atlantic nurse Maureen Reid, RN, BSN, joins the GOALS Podcast to discuss her personal history with ALS, connecting with ALS patients and families, ALS advocacy, and the strong reputation and research work at Penn State Health Hershey Medical Center.
Learn more about ALS, our programs and services, and how to support our mission at www.alsmidatlantic.org

GOALS Podcast 11 with Janie Dalrymple of ALS Arizona on Mechanical Ventilation

Janie Dalrymple joins The ALS United Mid-Atlantic GOALS Podcast for an important topic on ALS and Mechanical Ventilation. In this episode, Janie highlights the questions to ask before making a decision on mechanical ventilation, costs considerations, additional care needs, and long-term planning.
To learn more about ALS United Mid-Atlantic and how to support our mission, visit www.alsmidatlantic.org
To learn more about Janie and the work of ALS Arizona, visit www.alsaz.org
#ALS #mechanicalventilation #alsunited #longtermcare #trending #healthcare

GOALS Podcast #10 with Josh Hunter on ALS, AEW, Research, and Mental Health

Josh Hunter has a form of ALS called Juvenile ALS. Over the past year, Josh has been active in ALS awareness, advocacy, and research. In this ALS United Mid-Atlantic GOALS Podcast, Josh talks about a special week in review and shares his experience with his daughter Phoenix at the AEW Dynasty show and the Help and Hope Symposium. Other topics include mental health, caregiving, and an upcoming event on June 14th with Ric Flair at Harrah's Philadelphia Casino in Chester, PA. Join our ALS mission a www.alsmidatlantic.org
 
#ALS #alsunited #alsadvocacy #ALSresearch #AEW #pennsylvania

GOALS Podcast #9 with Diane Reibel, PhD, on ALS and Mindfulness

Diane Reibel, PhD, joins the ALS United Mid-Atlantic GOALS Podcast to discuss her work on ALS and Mindfulness. Topics include the sciences behind mindfulness, reducing stress, and programs to benefit people with ALS and their caregivers. To learn more about ALS and our programs, visit www.alsmidatlantic.org
Diane Reibel, PhD, is the director of the Myrna Brind Center for Mindfulness. Learn more about her work at https://www.jeffersonhealth.org/conditions-and-treatments/mindfulness-based-stress-reduction/mindfulness
#ALS #ALSUnited #Mindfulness #stress #caregiving #Podcast

GOALS Podcast #8 with Dana Little - ALS Caregiving and Advocacy

Dana Little joins the ALS United Mid-Atlantic GOALS Podcast to discuss her experience as a caregiver for her husband during his battle with ALS, how friends and family provide comfort and support, the importance of advocacy, and working to increase funding for research. Learn more about ALS and our services by joining our ALS mission at www.alsmidatlantic.org
 
#ALS #caregiving #podcast #alsunited #advocacy #alsadvocacy