GOALS: An ALS United Podcast

Discussing issues important to the ALS community with views from people living with ALS and those supporting the ALS cause. Topics range from research to caregiving to advocacy and fundraising. Support the mission of ALS United Mid-Atlantic at www.alsmidatlantic.org

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Episodes

4 days ago

Diane Reibel, PhD, joins the ALS United Mid-Atlantic GOALS Podcast to discuss her work on ALS and Mindfulness. Topics include the sciences behind mindfulness, reducing stress, and programs to benefit people with ALS and their caregivers. To learn more about ALS and our programs, visit www.alsmidatlantic.org
Diane Reibel, PhD, is the director of the Myrna Brind Center for Mindfulness. Learn more about her work at https://www.jeffersonhealth.org/conditions-and-treatments/mindfulness-based-stress-reduction/mindfulness
#ALS #ALSUnited #Mindfulness #stress #caregiving #Podcast

Tuesday Apr 08, 2025

Dana Little joins the ALS United Mid-Atlantic GOALS Podcast to discuss her experience as a caregiver for her husband during his battle with ALS, how friends and family provide comfort and support, the importance of advocacy, and working to increase funding for research. Learn more about ALS and our services by joining our ALS mission at www.alsmidatlantic.org
 
#ALS #caregiving #podcast #alsunited #advocacy #alsadvocacy

Tuesday Apr 01, 2025

Carol Hamilton joins the ALS United Mid-Atlantic GOALS Podcast to discuss the ALS research efforts from The ALS Therapy Development Institute (ALS TDI). In this episode, Carol talks about increased scientific collaboration, the challenges of complex trials, and empowering people with ALS through participating in ALS research.
Learn more about ALS and the work of ALS United Mid-Atlantic at www.alsmidatlantic.org
Learn more from ALS TDI at www.als.net
 
#ALS #Research #Science

Tuesday Mar 25, 2025

ALS United Mid-Atlantic social workers Melissa Coll and Anne Cooney join the GOALS Podcast to discuss their work assisting ALS patients and families, the value of a multidisciplinary treatment center, navigating insurance, and advocating for the ALS cause.
Join Melissa and Anne at the 2025 Help and Hope Symposium by registering at https://www.helpandhopealsmidatlantic.org/
Learn more about ALS, our services and research, and how to support the ALS mission at www.alsmidatlantic.org
#ALS #alsunited #socialwork #socialworker #socialworkers #advocacy

Thursday Mar 20, 2025

Jackie Cox discusses her mother's battle with ALS and the event at Haverford College to raise money for the ALS cause that takes place on April 4th, 2025. To learn more about ALS, upcoming events, and how to support ALS United Mid-Atlantic, visit www.alsmidatlantic.org
 
#ALS #ALSUnited #Haverford #podcast #Pennsylvania
 
https://secure.alsmidatlantic.org/site/TR/DIY/General?team_id=7001&pg=team&fr_id=1271

Tuesday Mar 18, 2025

Alisa Brownlee, ATP, CLIPP, CAPS, WSP, CEAC/Mastery, joins the ALS United Mid-Atlantic GOALS Podcast to discuss accessibility options for people with ALS, home modifications, and the personal connection between care staff and those living with ALS.
On Thursday, April 10th, Alisa will be one of the presenters at the ALS United Mid-Atlantic Help and Hope Symposium in King of Prussia, PA.
Register now at: https://www.helpandhopealsmidatlantic.org/ Join our ALS mission at www.alsmidatlantic.org
 
#ALS #alsunited #assistivetechnology #accessibility #podcast

Tuesday Mar 11, 2025

Tim Abeska, Cristy Hardin, and Deb Winters join the ALS United Mid-Atlantic GOALS Podcast to discuss the Tim Lowery Series and building community for those living with ALS. We talk about empathy dinners, building connections, and hope through advocacy. Learn more about Tim Lowery at: https://www.iamals.org/stories/tim-lowrey/
Join the ALS United Mid-Atlantic mission at www.alsmidatlantic.org
#ALS #ALSUnited #IAMALS #ALSAdvocacy #Advocacy #Empathy

Tuesday Mar 04, 2025

Sarah Brendle has been living with ALS for over 15 years. In this GOALS Podcast, Sarah discusses the support she has received through ALS United Mid-Atlantic, the power of advocacy, gathering with people for the ALS United Walk, and how to best care for the ALS community.
Listen, share, and learn more about how to support the ALS mission at www.alsmidatlantic.org
 
#ALS #ALSUnited #ALSAwareness #Advocacy

Tuesday Feb 25, 2025

ALS United Mid-Atlantic nurse Gail Houseman, RN, MSN-APRN, joins the GOALS Podcast to discuss the valuable Visiting Volunteer program. Gail runs this program to connect people with ALS with a caring volunteer who will come to their home to provide companionship and help around the house. The program is unique to ALS United Mid-Atlantic and is an example of treating each person as an individual and not just like a number on a spreadsheet.
Learn more about ALS, our programs and research, and how to support the ALS United Mid-Atlantic mission at www.alsmidatlantic.org
 
#ALS #ALSUnited #Volunteer #Healthcare

Tuesday Feb 18, 2025

ALS United Mid-Atlantic board member Crystal Goodwyn joins the GOALS Podcast to discuss her personal connection to ALS. Topics include learning about ALS through Crystal's brother Kevin Glenn, the support from the Philadelphia Phillies, and how the ALS United Mid-Atlantic board is focused on research and patient care.
Learn more about ALS, our programs and services, and how to get involved, at www.alsmidatlantic.org

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